June is brain injury awareness month in Canada. Other nations use other months to raise awareness about brain injury. But what does raising awareness mean? Do we simply want people to hear about it over their morning coffee, then go on about their lives, oblivious to the suffering all around them? Or do we want to change the lives of people with brain injury for the better so that they can actually heal from their injuries, live within society, regain their dreams and families?
Back in 1980, a young man who had survived osteogenic sarcoma declared he would run across Canada to raise awareness for cancer. Back then cancer was seen as fatal, a shameful disease that people didn’t talk about much or they whispered sympathies behind closed doors for anyone caught with having grown a tumour. Children with cancer would, of course, die tragically, as everyone knew. A cure was not possible. Talking about the disease and advances in treatment was restricted to those with it or within medical circles. And then Terry Fox dipped his artificial right leg in the cold Atlantic waters off of Newfoundland, Canada and set off in his quintessential one-good-leg, one-prosthetic-leg hop to run a marathon-a-day across the second-largest country in the world.
Not many noticed his leg dip. But as he ran day after day on the highways of Canada, people began to pay attention. There was no social media, so it was word of mouth and local papers (which still existed back then) that spread the news of Fox’s Marathon of Hope.
Hope . . .
And the one-legged hop of a young man braving to put a public face on a dread disease.
Those are what caught the media’s attention so that by the time he hit Toronto, Canada’s largest city, so many people knew about his mission that crowds swallowed him up and overflowed his fundraising coffers. They cheered him on as he exited the city and turned north.
Cancer snuck into his Marathon of Hope and suffocated his dream.
People had seen that bone cancer had taken his leg. They had assumed he was alright and was awfully brave for running a marathon a day. But when cancer came back and crawled into his lungs, it exploded the myth that people were fine if they continued to live after a cancer diagnosis.
Canada was invested in the life of this man; heartbroken when cancer stole his dream from him; mourned when he died. Canada’s collective emotion drove people to talk about cancer out loud; to donate and fundraise for a cure through Terry Fox runs. Funds pouring in fired up researchers and clinicians to search harder for a cure and to treat people kinder and more empathetically; tangible awareness inspired others to provide support and services to boost morale during dreadful cancer treatments. When someone received a cancer diagnosis, friends, family, neighbours now knew what that meant and rallied around to provide lifts to appointments, hot meals, coffee time. Other countries heard about Fox, and Terry Fox runs sprouted up all over the world. Some cancers are now curable. Children no longer automatically die.
No one with cancer is ostracized anymore.
None of this is true for people with brain injury. They remain in the shadows; mainstream researchers and clinicians talk about strategies and acceptance, not curable treatments; those who understand neuroplasticity and have developed effective treatments remain unknown or dismissed as shams; family and friends are given permission to abandon their injured loved one. And no one is expected to rally around for the years it currently takes to recover and the decades of living within its constricting walls.
Shame and disgust sideline people with brain injury into day programs — keep them busy so that they won’t notice society wants nothing to do with them. Shame and disgust lead so-called experts to judge injury-driven behaviours instead of treating the neurons so that the person can be themself again. Shame and disgust lead most to avoid reading up about it, to avoid the injured person, and to deny the need to accommodate.
We talk good game about concussion in athletes and troops, but we don’t change our attitude to fund treatments, to talk out loud about how the brain affects every single part of you and so every single part of you from your thoughts to your heart can be injured and so need treatment. Talk is solely about the mysterious CTE or PCS — aka untreated brain injury — and donating concussed brains to science.
We need a Terry Fox-type ignition for brain injury.
Brain injury awareness months just aren’t cutting it. What tour de force will ignite a nation, spread awareness of brain injury around the globe to finally change lives for the better?
As you may remember, I crowdfunded an update to Concussion Is Brain Injury back in 2016. I’m pleased to announce that it’s finally launched!
Kirkus Reviews: “the intricate details of the author’s experience are riveting and enlightening.”
After many years of incubation, Concussion Is Brain Injury is re-birthed with a brand-new reader-friendly structure, all-new chapters, and updated information on my newest (experimental) treatments. The Treating the Neurons and Me edition tells my story in all its rawness and, in separate sections, outlines the lessons I learned, the treatments I underwent that dramatically healed — and keep healing — my damaged brain. I’ve written it for people with brain injury and those who know people with brain injury, with sections and related blog pages for those who want to know more about the technical details.
Self-Publishing Review: “Jeejeebhoy’s tale is highly emotional…uplifting, while giving a realistic view of recovery.”
Brain injury is a hidden epidemic and unfortunately is not treated under the current standard of care. Although fellow Torontonians like Dr. Norman Doidge have spread the news about the neuroplasticity of the brain and treatments harnessing that, most people with brain injury remain untreated. As I write: “traditional rehabilitation, involving cognitive therapy and rest, were ineffective.” Rest and strategies are not treatment. My goal in writing Concussion Is Brain Injury: Treating the Neurons and Me is to change that and give people knowledge of how they can begin to heal their brain.
Concussion Is Brain Injury: Treating the Neurons and Me is out now in paperback or ebook. Please check out my website page on it for all the details.
We are thrilled to share fabulous news about one of our Toronto alumnae: Heritage Toronto is honoured to name Arlene Chan (neé Lumb, Canada Alpha 1970) as the recipient of the 2017 Special Achievement Award. Presented by the Heritage Toronto Board of Directors, the Special Achievement Award celebrates individuals who have made exceptional contributions to the preservation and education of Toronto’s heritage. A community advocate, librarian and author, Arlene Chan has spent her lifetime documenting and sharing the Chinese Canadian experience in Toronto.
Born in Toronto, Chan learned her most important lessons at the feet of her mother, Jean Lumb, CM, a restaurateur and social justice advocate. Lumb taught her daughter the importance and rewards of community work, especially with her successful “Save Chinatown” campaign in the 1970s that fought to protect the area from redevelopment. After earning a bachelor of arts and masters in library science at the University of Toronto, Chan chose to devote herself to projects that carry on her mother’s legacy.
Among her many accomplishments, Chan is the author of seven books on the history and culture of Chinese Canadians; she is currently working on a historic guide to Toronto’s Chinatowns. She is the President of the Jean Lumb Foundation and oversees the Jean Lumb Awards which provide scholarships to high school students of Chinese heritage. Chan has also collaborated with numerous organizations on interpretive projects, community programs, and walking tours, including her work with the Ontario Heritage Trust, Toronto Ward Museum, and Heritage Toronto.
Chan’s generous spirit is reflected in her many volunteer commitments. She is a Little Pear Garden Dance Company board member, a member of the Toronto Public Library’s Chinese Canadian Archive advisory group, and serves on the Heritage Interpretation Working Group for the New Toronto Courthouse.
“Arlene Chan’s knowledge and affection for Toronto and its Chinese community are well reflected in her work. Her literary efforts are treasure houses of information and celebration for all those who seek to learn, understand and enjoy.” David Crombie, former Mayor of Toronto
Huge congratulations to our Toronto Tri Delta sister Arlene on this honour!!!
The Special Achievement Award will be presented at the 43rd Heritage Toronto Awards on Monday, October 23, at The Carlu, a tour de force of Art Moderne design and a National Historic Site. At this premier event for the heritage sector, more than 500 attendees will enjoy the Mayor’s Reception, hosted by Mayor John Tory. Winners will be announced during the Awards Ceremony, hosted this year by Christopher Hume, the long-time architecture critic and urban issues columnist at The Toronto Star.
Tickets to the event are sold out. This event is Heritage Toronto’s major fundraiser of the year, raising monies in support of its public programming.
Heritage Toronto is a charity and agency of the City of Toronto that celebrates and commemorates the city’s rich heritage and the diverse stories of its people, places, and events.
Dear Tri Delta Sisters,
I’m really excited to announce that I’m crowdfunding an update to my 2012 book Concussion Is Brain Injury! I want to make it better for readers. I want to enrich and enhance it with ground-breaking new sections that challenge the status quo, sections on the raw reality of relationships, the truth about our emotions, my thoughts on CTE (Chronic Traumatic Encephalopathy), faith after injury, rehabilitating reading in the knowledge economy, and a promising new treatment that I kickstarted.
To that end, I need your help to fund the services I need to bring this book to readers. The funds raised through PubLaunch – a crowdfunding site designed specifically for authors and readers – will go towards professional editing, a new exciting cover design, better packaging, and a robust marketing campaign. In return for your generous support, I have set up some great rewards for you, including prints of my original photography, special edition hardcover copies, and copies of my previous books.
The target of $11,000 will cover all expenses. Won’t you join me in making this second edition happen? Please click the link to check out the campaign: http://www.publaunch.com/campaigns/concussion-brain-injury
If you have any questions about my book or PubLaunch, please ask in the comments section. I greatly appreciate your support, and I look forward to continuing to help, educate, and inspire my readers. Thank you!
“Even though I worked with children who had brain injuries I found myself failing to understand some of Shireen’s frustrations and struggles and that is why I jumped at the chance to read her book. The book is a must read for ANY PROFESSIONAL who works [with] adults or children with brain injuries. It gives you the prospective [sic] of how frustrating our system can be and the lack of hope most professionals give to people with brain injuries.” Nancy Howson on Facebook
This year’s Annual General Meeting falls on the day of Mardi Gras and during Carnival, so please join us for our AGM and ‘Carnival’ themed party!
The event will be held on February 9th at 6pm at Vanessa LeBouthillier’s party room, located at 305 Roehampton Ave.
Dues-paying members of the Toronto Alumnae Chapter will be voting on the 2016-2018 Alumnae Chapter Executive Committee slate.
Please advise whether you plan to bring an appetizer, dessert or wine in the comments below.
Donations of gift cards, toiletries and lightly used toys and clothing for women and children will be collected for Juliette’s Place, homeward family shelter and we will be collecting for Adopt-A-New Member fund.
The building is one block East of Eglington station (at Yonge St.).
Please use Vanessa’s buzzer code #1104 at the entrance.
The party room is located on the first floor, at the end of the lobby entrance on the right hand side, right after the elevators.
Free street parking is available on Roehampton Ave. and Rawlinson Ave., the intersection where the building is located.
Visitor parking is also available at the building. Please check in at reception before parking.
Don’t forget to bring your beads, masks and any festive wear to the party!
I’ve edited the book launch event for Concussion is Brain Injury on December 14th to reflect the new RSVP date. I hope that you can join me there!
Gladys Rutherford Cranston died on Wednesday, October 17, 2012 in her 101st year.
Gladys was the last living charter member of Canada Alpha. Gladys’s pin number was 27, and there were 30 in the charter group. She had also received the Golden Circle and Diamond Circle pins in her long history with our fraternity.
Gladys did not forget her frat roots. She was a member of the Stoneagers, Alumnae President, and an active supporter of Tri Delta for many years. She came to the house for our 75th celebration. She had 2 children, 4 grandchildren, and 2 great grandchildren. The service was held at Calvin Presbyterian Church.
New Member Meet and Greet
Oct. 4, 2012 at 7 p.m.
On Thursday October 4, 2012 the alumnae executive invites you to a “Meet and Greet” night at the chapter house. Come out and meet the new members following recruitment! The event starts at 7:00 p.m. Light refreshments and hors d’oeuvres will be provided, along with games and activities to meet the collegiates.
If you would like to contribute to the event please bring a small wrapped item (i.e. a $5 gift card, school supplies, a Tri Delta item etc.) to be used in an activity to welcome the new members. Please RSVP on the website or send an email to firstname.lastname@example.org.
Hope to see you there!
I’m pleased to announce the release of my second book and first novel She, as well as three other ebooks.
She is the classic tale of betrayal and friendship – with an evil entity thrown into the mix. Akaesman is that evil entity. And a young Toronto songwriter is his latest prey. Akaesman violently invades her and tries to make her into his image forever. Her career dies. Her name is gone. And then as her friends and fiancé turn their backs on her as she fights to resist Akaesman, she realizes the worst kind of evil: betrayal. That’s when her real battle for life begins.
“Put simply this is the best urban fantasy story that I have ever read period….you feel exactly how the main character feels. “She” is written with a pace that makes you feel every single word combined with hauntingly beautiful descriptions to forge a story that is anything but forgettable. That is the mark of a truly talented writer, someone who tells a story that you feel as opposed to reading words on a cold piece of paper.
One of the greatest attributes of “She” (One of many I might add) is how mysterious everything is within its pages. Considering that this story is done in the real world that is quite an accomplishment.” From the five-star review by Shane Porteous on Goodreads.com.
I have created a page for my new novel on my website, complete with a YouTube playlist of the music mentioned in the book. I invite you to visit it today.
She is available in trade paperback at the low price of US$14.99 and all ebook formats at a ridiculously low US$2.99.
The paperback is listed in all Amazon stores, Barnes & Noble, BetterWorldBooks, The Book Depository, Paddyfield, adlibris, and directly through my Amazon CreateSpace eStore. Unfortunately, Chapters has slotted it under Used and Rare, with a highly inflated price. I am working on changing this. Fortunately, Amazon.ca is competitive with Chapters in shipping and service, and I recommend Amazon.ca or my CreateSpace eStore to Canadians. Since the trade paperback is distributed by Ingram, any bookstore should be able to order it in upon request.
The ebook is available in ePub format for kobo, iPad, iBooks, Nook, Sony Reader, and mobile devices; in mobi and Amazon format for Amazon Kindle; and in PDF and other formats. All ebook formats are listed at Smashwords; ePub format at iBooks, Barnes & Noble, Diesel eBook Store, kobo in the next few weeks or months, and many other etailers; and Kindle format at all Amazon stores.
I am also thrilled to announce the release of three new ebooks, available everywhere in all formats:
A Nibble of Chocolate, about the nutritional qualities of chocolate and with a cookie recipe to boot. Only US99¢.
The Job Sessions: Why Do The Innocent Suffer?, a guide to the Book of Job in the Bible. At a low US99¢.
Eleven Shorts +1, a collection of short stories I wrote before my brain injury plus a bonus romantic short story written by my grandmother in 1919, regularly US$2.99.
But for a limited time only Eleven Shorts +1 is FREE on Smashwords. It’s a risk-free way to check out my fiction writing. All I ask is to please leave a review on it on Smashwords or if you prefer, a review of Lifeliner or She or one of my other books on Amazon or on the store website where you purchased it. Reviews are invaluable. They tell readers who don’t know me that others have not only read one of my books, they think it’s worth buying too. Reviews encourage readers to buy and try one of my books.
I hope you enjoy my newest work!
I wanted to share the good news with you that Lifeliner: The Judy Taylor Story is now available in multi-format eBook for reading on a computer, smartphone, Palm, Amazon Kindle, Sony Reader, Kobo, Nook, Apple iPad, etc. at Smashwords.com (listings on retail sites like iBookstore and Barnes & Noble coming in 1 to 8 weeks). As you know, my book tells the story of how vibrant Torontonian Judy Taylor fell ill and faced slow starvation until a young doctor offered her life with a catch — she can never eat again. Here’s the link to the book page where you can sample, watch video trailers, or purchase Lifeliner:
“A compelling story…Reading it will make you laugh, smile, cringe, cry and most importantly, think. If you want inspiration, Lifeliner has no shortage packed into its pages.” Diana Rohini LaVigne, Online Editor Indian Life & Style Magazine and India-West, from four-star review
Please help me spread the word. Won’t you take a moment to forward this message to everyone you know and ask them to do the same? And if you have a moment and have enjoyed Lifeliner, please leave a review too! A free sample is available here too: